Jennie: I've been touched by stories of babies and children with congenital heart conditions. What is being done to raise awareness? & how can I help?

As you've mentioned we use stories to help raise awareness of the issue. Of course we're always striving to do more through improved ways of telling the story. If you have any personal skills or experience to help us do this we'd be delighted to hear from you.

Of course you can always support the British Heart Foundation in its work through volunteering or donating. This support helps us to carry on the funding of vital research into this tragic condition.

We've funded a number of research projects on congenital heart disease over our almost 50 years. There are many children who survive now as a result of this pioneering work. We continue to fund research in this area.

Many of these children are now young adults and benefit from our Yheart work which helps build confidence and enables them to live as normal a life as possible.